#131950 ICD+
  • SNOMEDCT: 398071000
SNOMEDCT: 398071000
EPIDERMOLYSIS BULLOSA SIMPLEX, OGNA TYPE

Alternative titles; symbols
EBS-OG

Phenotype Gene Relationships
Location Phenotype Phenotype
MIM number
Gene/Locus Gene/Locus
MIM number
8q24.3 Epidermolysis bullosa simplex, Ogna type 131950 PLEC1 601282


TEXT
A number sign (#) is used with this entry because this phenotype can be caused by a mutation in the PLEC1 gene (601282).

Clinical Features
This form of EBS was identified by Gedde-Dahl (1971) in a large Norwegian kindred living in the town of Ogna. It was differentiated from the more generalized form of Koebner (131900) and the localized form of Weber and Cockayne (131800) by the occurrence of skin bruising in the Ogna type.

Gedde-Dahl (1977) identified 97 cases in the Norwegian kindred. He suggested that the first family of Cockayne (see 131800) may have had the Ogna form.

Koss-Harnes et al. (2002) characterized the ultrastructural characteristics of EBS Ogna skin and found that blisters do not start via cytolysis of subnuclear central portions of the basal cell cytoplasm as in EBS Koebner and EBS Weber-Cockayne, but originate in the deepest areas of the basal cell cytoplasm, immediately above (but not within) hemidesmosomes. In unseparated perilesional and preblistering skin, keratin filaments are inconspicuous and normal for basal cells, but their insertion into the hemidesmosome attachment plates is impaired. Clumped basal keratins as in the Dowling-Meara type (131760) were not found in any of the skin samples. The hemidesmosomes themselves are normally structured with regard to their extracellular portions, but their intracellular attachment plates are mostly thin, their thickness being about half that of normal hemidesmosome attachment plates. This specific ultrastructure is significantly different from classical cases of EBS Koebner, EBS Weber-Cockayne, and EBS Dowling-Meara, all of which form entirely normal hemidesmosomes. Consistent with the absence of muscular symptoms in these patients, muscle biopsies from several affected members of the Norwegian kindred showed normal staining patterns using antibodies to plectin.

Mapping
Olaisen and Gedde-Dahl (1973) concluded that the locus for this disorder is closely linked (about 3 cM) to that for red cell soluble glutamate-pyruvate transaminase (GPT; 138200). Inasmuch as GPT has been localized to 8q24, EBS1 must be located there as well.

Molecular Genetics
Koss-Harnes et al. (2002) reported that the EBS Ogna phenotype is due to a site-specific missense mutation within rod domain of plectin (601282.0005). Mutations in plectin also cause autosomal recessive epidermolysis bullosa simplex with muscular dystrophy (226670). Koss-Harnes et al. (2002) showed that EBS Ogna is not restricted to a single Norwegian kindred as theretofore believed. A German family with the phenotypic hallmarks of EBS Ogna carried an identical de novo mutation. Koss-Harnes et al. (2002) concluded that these 2 mutations arose about 200 years apart.

See Also:
Olaisen and Gedde-Dahl (1974)

REFERENCES
1. Gedde-Dahl, T., Jr. Epidermolysis Bullosa: A Clinical, Genetic and Epidemiological Study. Baltimore: Johns Hopkins Press (pub.) 1971.

2. Gedde-Dahl, T., Jr. Personal Communication. Oslo, Norway 1977.

3. Koss-Harnes, D., Hoyheim, B., Anton-Lamprecht, I., Gjesti, A., Jorgensen, R. S., Jahnsen, F. L., Olaisen, B., Wiche, G., Gedde-Dahl, T., Jr. A site-specific plectin mutation causes dominant epidermolysis bullosa simplex Ogna: two identical de novo mutations. J. Invest. Derm. 118: 87-93, 2002. [PubMed: 11851880, related citations] [Full Text: Nature Publishing Group, Pubget]

4. Olaisen, B., Gedde-Dahl, T., Jr. GPT-epidermolysis bullosa simplex (EBS Ogna) linkage in man. Hum. Hered. 23: 189-196, 1973. [PubMed: 4760576, related citations] [Full Text: Pubget]

5. Olaisen, B., Gedde-Dahl, T., Jr. GPT-EBS(1) linkage group: general linkage relations. Hum. Hered. 24: 178-185, 1974. [PubMed: 4425507, related citations] [Full Text: Pubget]

Contributors: Gary A. Bellus - updated : 2/20/2003
Creation Date: Victor A. McKusick : 6/4/1986
Edit History: ckniffin : 08/19/2009
alopez : 2/20/2003
mimadm : 9/24/1994
davew : 6/27/1994
warfield : 4/8/1994
carol : 5/29/1992
supermim : 3/16/1992
carol : 10/11/1991