#241850
HYPOTHYROIDISM, ATHYROIDAL, WITH SPIKY HAIR AND CLEFT PALATE

Alternative titles; symbols
BAMFORTH-LAZARUS SYNDROME

Other entities represented in this entry:
HYPOTHYROIDISM, THYROIDAL, WITH SPIKY HAIR AND CLEFT PALATE, INCLUDED

Phenotype Gene Relationships
Location Phenotype Phenotype
MIM number
Gene/Locus Gene/Locus
MIM number
9q22.33 Bamforth-Lazarus syndrome 241850 FOXE1 602617


TEXT
A number sign (#) is used with this entry because of evidence that Bamforth-Lazarus syndrome is caused by mutations in the gene encoding thyroid transcription factor-2 (FKHL15; 602617).

Bamforth et al. (1989) described 2 brothers with athyroidal hypothyroidism, spiky hair, choanal atresia, cleft palate, and bifid epiglottis. Polyhydramnios was present in the third trimester in both pregnancies. The parents were nonconsanguineous, and the mother and father were 23 and 27 years old, respectively, at the birth of their first child. Buntincx et al. (1993) reported a female child with the same syndrome. Choanal atresia may have been responsible for the polyhydramnios which was observed in all 3 cases. The unusual spiky or curly hair extended onto the forehead.

Clifton-Bligh et al. (1998) demonstrated that thyroid agenesis, cleft palate, and choanal atresia in the 2 brothers reported by Bamforth et al. (1989) was caused by a homozygous missense mutation (A65V; 602617.0001) in the gene encoding thyroid transcription factor-2. At the time of this report the boys were aged 16 and 13 years, and were receiving thyroxine replacement, with normal physical growth, pubertal development, and anterior pituitary function. In neither case was thyroid tissue detected by (123)I scanning or by ultrasonography of the neck. Maternal thyroid function was normal both basally and in response to TRH. Chatterjee (1998) stated that abnormal hair growth had persisted in the 2 sibs despite adequate thyroxine therapy. Presumably this indicates an intrinsic abnormality of hair follicle development.

Castanet et al. (2002) described a mutation (S57N; 602617.0002) in the FOXE1 gene in 2 male sibs, born to consanguineous parents, with congenital hypothyroidism, athyreosis, and cleft palate. Unlike previous cases, these patients had an incomplete phenotype, lacking choanal atresia and bifid epiglottis.

Chatterjee (1998) suggested that the name of Lazarus, the senior author of the report by Bamforth et al. (1989), should be included with that of Bamforth, his resident, in the designation of the syndrome.

Baris et al. (2006) reported a child, the daughter of consanguineous Turkish parents, with Bamforth-Lazarus syndrome who presented with congenital hypothroidism, bilateral choanal atresia, cleft palate, and spiky hair but who was not athyreotic. Thyroid ultrasonography and computed tomography examination indicated thyroid tissue in a eutopic location, although biochemical measurements and radioisotope scanning showed that it was nonfunctional. The child was homozygous for a missense mutation affecting a highly conserved residue within the forkhead DNA-binding domain of FOXE1 (602617.0003).

REFERENCES
1. Bamforth, J. S., Hughes, I. A., Lazarus, J. H., Weaver, C. M., Harper, P. S. Congenital hypothyroidism, spiky hair, and cleft palate. J. Med. Genet. 26: 49-60, 1989. [PubMed: 2918525, related citations] [Full Text: HighWire Press, Pubget]

2. Baris, I., Arisoy, A. E., Smith, A., Agostini, M., Mitchell, C. S., Park, S. M., Halefoglu, A. M., Zengin, E., Chatterjee, V. K., Battaloglu, E. A novel missense mutation in human TTF-2 (FKHL15) gene associated with congenital hypothyroidism but not athyreosis. J. Clin. Endocr. Metab. 91: 4183-4187, 2006. [PubMed: 16882747, related citations] [Full Text: HighWire Press, Pubget]

3. Buntincx, I. M., Van Overmeire, B., Desager, K., Van Hauwaert, J. Syndromic association of cleft palate, bilateral choanal atresia, curly hair, and congenital hypothyroidism. J. Med. Genet. 30: 427-428, 1993. [PubMed: 8320710, related citations] [Full Text: HighWire Press, Pubget]

4. Castanet, M., Park, S.-M., Smith, A., Bost, M., Leger, J., Lyonnet, S., Pelet, A., Czernichow, P., Chatterjee, K., Polak, M. A novel loss-of-function mutation in TTF-2 is associated with congenital hypothyroidism, thyroid agenesis and cleft palate. Hum. Molec. Genet. 11: 2051-2059, 2002. [PubMed: 12165566, related citations] [Full Text: HighWire Press, Pubget]

5. Chatterjee, V. K. Personal Communication. Cambridge, England 8/19/1998.

6. Clifton-Bligh, R. J., Wentworth, J. M., Heinz, P., Crisp, M. S., John, R., Lazarus, J. H., Ludgate, M., Chatterjee, V. K. Mutation of the gene encoding human TTF-2 associated with thyroid agenesis, cleft palate and choanal atresia. Nature Genet. 19: 399-401, 1998. [PubMed: 9697705, related citations] [Full Text: Nature Publishing Group, Pubget]

Contributors: John A. Phillips, III - updated : 07/11/2007
George E. Tiller - updated : 7/11/2003
Victor A. McKusick - updated : 9/4/1998
Victor A. McKusick - updated : 7/28/1998
Creation Date: Victor A. McKusick : 1/24/1989
Edit History: alopez : 07/11/2007
cwells : 11/10/2003
cwells : 7/11/2003
carol : 1/4/2001
carol : 9/8/1998
terry : 9/4/1998
alopez : 7/31/1998
terry : 7/28/1998
mimadm : 2/19/1994
carol : 7/22/1993
carol : 7/13/1993
carol : 7/12/1993
supermim : 3/16/1992
supermim : 3/20/1990